We need people – people like those in TB Alert, who are focused and ambitious and care for people at grass roots in the UK, India and Africa. Dr Lucica Ditiu, Executive Secretary of the Stop TB Partnership
- Provides support for people during their treatment and recovery from TB
- Raises awareness of TB and advocates for improved TB services
Many people feel that they need support during their treatment for TB, which is long – at least six months – and often difficult. TB patients are required to take many tablets each day, that often cause unpleasant side-effects. They may also feel isolated or that no-one understands what they are going through. Unfortunately, many people are unaware that TB is still a problem in the UK, and stigma around TB is still all too common.
TBAG members are on-hand to provide support by telephone throughout those long months of treatment, and even afterwards for people struggling with long term physical and emotional impacts from TB. Members also respond to questions posted on our online patient community.
TBAG members receive ongoing support from each other too, at regular meetings and social events where they may also discuss national and international TB issues and advocacy opportunities.
TBAG members use their stories and insights to advocate for better TB services. TB Alert supports this work by highlighting the importance of including the patient voice in effective TB services, and by securing opportunities for members to participate in consultations and events around TB, public health and international development.
TBAG members have been a key part in the success of third sector training, under The Truth About TB programme, that is enabling local third sector organisations to represent communities at risk of TB in partnerships with local government and NHS service providers.
TBAG is increasingly becoming an independent organisation and the first point of call for TB policy-makers who need the patient’s perspective. TBAG is widely consulted on TB policy and practice, such as the recent NICE guidelines for the management and control of TB and a consultation on the social determinants of TB, co-sponsored by the World Health Organisation, United Nations Development Programme and others. Find out more in Amy’s story.
TBAG member stories feature across our UK TB awareness raising activity, including on our sister site for people seeking information about TB in the UK, www.thetruthabouttb.org ,and in our short film, TB: the real story.
TBAG members may also share their story in the media, a brilliant way to raise public awareness of TB: Read Imla’s story in The Independent.
Get in touch
If you would like to get involved with TBAG; to receive support from a TBAG member; or to invite a TBAG member to participate in a consultation or event, please contact Tessa Marshall, Policy and Engagement Officer on 01273 234770.
If you are a journalist looking for a national or international TB case study, please contact Helen Clegg, Communications Manager, on 01273 234030.
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